SPIN - Issue 111 (2023)

Ménière’s Society for dizziness and balance disorders SPPIINN Issue 111 (2023) In this issue… Tinnitus — Current Perspectives Christmas Cards 2023 Prize Draw! …and more!

2 SPIN 111 © 2023 The Ménière’s Society Paper from responsible sources FSC® C020438 MIX ® SPIN: The Ménière’s Society Magazine Ménière’s Society The Atrium, Curtis Road, Dorking, Surrey RH4 1XA 01306 876883 info@menieres.org.uk www.menieres.org.uk Registered charity number: 297246 On the cover: “Chaos and Unbalance” by Julieann Wallace. See ‘Dizziness and Me’ page 6. Mountain Walk Fundraiser. See page 19. Contributions to the next issue: To submit articles for consideration for a forthcoming issue, please email spin@menieres.org.uk or write for the attention of Spin to the Ménière’s Society at the above address. We reserve the right to edit all material submitted for publication. Advertising and Sponsorship: Inserts in Spin, along with quarter, half or full-page adverts are available; as well as sponsorship of Spin or other Ménière’s Society publications or events. For more information about advertising or sponsorship opportunities, please contact us (details above). Founder Mrs Marie Nobbs MBE (1922-2016) Patrons Mr Ian Chapman CBE Dlitt FRSA Ambassador Diego Kaski MBBS PhD Office Team Natasha Harrington-Benton, Director Laura Fulco, Membership & Support Lead Eleanor Raynsford, Supporter Engagement Administrator Kelly Boyson, Freelance Honorary Officers and Trustees David Renton, Chair of Trustees Pennie Ford, Vice-Chair Sara Christopher, Treasurer Spike Bromley Andrew Clements Carol Evans Colin Hughes Rory MacNeill Isabel Spence Simon Webster Disclaimer The Ménière’s Society has undertaken no investigation of any treatment, medication, exercise or diet mentioned in Spin. It makes no representation or warranty in relation to any such treatment, medication or exercise or diet and expressly disclaims any and all liability resulting from its use. The Society strongly recommends you consult your GP, consultant, specialist or therapist for professional guidance before altering, suspending or discontinuing any treatment, medication, exercise or diet. Confidentiality & Privacy Policy We offer a confidential service and will not share your details with any other organisation or individual without your express permission. Your data is stored securely and we will only use your personal information to administer your account, your membership and to provide the products and services you have requested from us. Our Privacy Policy gives more details about how we use and look after your personal information https://www.menieres.org.uk/privacy-policy. Please help us keep your details up to date. Visit https://www.menieres.org.uk/account/ to login or register an online profile with us to let us know how we can contact you and what you’d like to hear about. You can also provide this information over the phone or contact us to receive a form through the post. If you wish to change your mind at any time about the information you receive from us, or how you are contacted by the Ménière’s Society, please call us on 01306 876883 or email info@menieres.org.uk. Copyright The contents of Spin are copyright of the Ménière’s Society, as are the Society’s information sheets and publications, and may not be reproduced or distributed either physically or electronically without the Society’s express permission in writing. Spin is for the personal use of members and others to who it is specifically addressed by the Ménière’s Society. Published by the Ménière’s Society © 2023 Typeset and printed by Hobbs the Printers, Brunel Road, Totton, Hampshire SO40 3WX

SPIN 111 © 2023 The Ménière’s Society 3 Contents Society News Welcome to Spin 111 4 Online Support Sessions 5 Dizziness and Me 6 Articles and Features Current Perspectives of Tinnitus and its Management 8 Ageing as a Risk Factor for Tinnitus and its Complex Interplay with Hearing Loss 10 Things We Take For Granted 11 Case Studies 12 Research Studies Recruiting Participants 16 Fundraising and Awareness Celebrating Fundraising Success 18 Legacies 21 Corporate Supporters 21 Prize Draw 2023 – Your Chance to Win £1000 22 200+ Club 23 Vertigo Voice 23 Christmas Cards 2023 24 Fundraise at no extra cost! 25 Peer Support, Local Groups and Networks Dear Spin 26 Let’s Talk Friday 27 Contact a Member 29 Support Group Listings 30 Be A Balanced Employer 31 Merchandise Back cover

4 SPIN 111 © 2023 The Ménière’s Society Society News Welcome to Spin 111 As you’re reading this, we’ll have not long had our AGM and Balance Awareness Week. We’ll update on these further in the next issue. If you took part in Balance Awareness Week, don’t forget to send any photos and write-ups for us to include in Spin. Our Christmas cards are now available. We have a great selection and the proceeds from sales go to support the work of the Ménière’s Society. Not only will you be sending a thoughtful card to a friend or family member, but you will also be raising funds for a great cause! There’s a choice of traditional and funny cards, so there’s something for everyone. An order form is enclosed with this issue of Spin and you can also order online or over the phone. If you have any questions or would like any additional information, please contact us on 01306 876883 or email info@menieres.org.uk. https://www.menieres.org.uk/shop The Ménière’s Society Christmas Prize Draw is your chance to win £1000. You’ve got to be in it to win it, so why not have a go! A book of tickets is enclosed with this issue of Spin. It’s also a great fundraiser for the Ménière’s Society. Tickets cost just £1 each. See page 22 to find out more. All proceeds support the work of the Ménière’s Society. This is the last issue of Spin for this year, issue 112 will be published in early 2024. In the meantime, you can keep in contact with us via our : website: https://www.menieres.org.uk, social media @menieressociety, or online support sessions (page 5). We’d love to hear from you if you have a story to share, want to fundraise for us or become a vertigo voice champion (page 23), have suggestions for Spin, or just want to chat with our team. We’re also there for you if you have questions about your membership or want further information to help you manage your condition. Please get in contact: • drop us an email: info@menieres.org.uk • give us a call: 01306 876883 • write to us: Ménière’s Society, The Atrium, Curtis Road, Dorking, Surrey RH4 1XA Thank you for supporting the Ménière’s Society.

SPIN 111 © 2023 The Ménière’s Society 5 Online Support Sessions The Ménière’s Society hosts online sessions to give our members and supporters a chance to chat with us and each other about their vestibular condition and how they manage it. Meetings are hosted by the Ménière’s Society team and offer the chance for informal discussion and an opportunity to ask questions (note: questions should be of a general nature as we’re unable to give medical advice or answer questions related specifically to your own medical condition). From time to time, we’ll also have guest speakers discussing a variety of topics. There are sessions aimed specifically for members of the Ménière’s Society and others for non-members. Meetings run at lunchtimes or evenings to try and give everyone a chance to attend. Sessions for Members Time (please note time stated is London, UK) Tuesday 17 October 2023 1300-1345 Wednesday 29 November 2023 1300-1345 Tuesday 16 January 2024 1300-1345 Sessions for Non-Members Time (please note time stated is London, UK) Thursday 19 October 2023 1300-1345 Thursday 30 November 2023 1300-1345 Thursday 18 January 2024 1300-1345 To register for a meeting please call us on 01306 876883 or email info@menieres.org.uk with your full name and Ménière’s Society membership number, confirming which meeting you’d like to attend. Places are limited to give everyone a chance to chat and will be allocated on a firstcome first-served basis. You will receive confirmation by email and a Zoom link for the meeting. Further meeting dates will be published in due course. We look forward to welcoming you to one of our meetings.

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