SPIN - Issue 100 (2019)

SPIN 100  © 2019 The Ménière’s Society 5 Meet the Trustees: Rory MacNeill I have suffered from Ménière’s disease for over 25 years. When I was first diagnosed I joined the Society and benefited from the information they were able to supply and was able to meet other sufferers at the Annual Conference. In the intervening period, I focussed on holding down my job, helping to bring up three children and trying to maintain some sort of a normal life. Spin was a regular reminder that I was not alone in my struggles and indeed that many were worse off than me. A couple of years ago I managed to retire early and with my symptoms now limited to tinnitus and hearing issues I felt that I would like to help in some way as a Trustee of the Society along with other retirement pursuits — I play golf regularly, still play a bit of cricket, try to maintain my allotment and garden and do a little consultancy. I have now been a Trustee for over a year and it has been rewarding in many ways. I have enjoyed the company of the other trustees and office staff — it is so nice to be in an environment where I don’t have to pretend all is well! It is exciting to see the research proposals that we receive and great to be part of a team doing a lot of good things. I hope that my commercial and marketing background can help us and I have been involved in many different projects including helping to set up the Free Wills offer, developing packages for corporate support sponsorship and putting together a fundraising strategy for the Society. I am motivated by the fact that any increase in the funds raised will help us sustain our investment in research and really make a difference to sufferers in the future.   Conference 2019 Save the Date! The Ménière's Society Conference and AGM will be held on Saturday 12 October 2019. We’re delighted to be back at the same venue as last year — etcvenues Avonmouth House, near London Bridge. The conference brings together those affected by vestibular (inner ear) disorders with health professionals and the trustees and staff of the Ménière’s Society for an informative and enjoyable event to provide insights into the latest research, support and methods for the treatment and management of vestibular conditions. Full details will be available on our website shortly https://www.menieres.org.uk and a booking form will be included in the next issue of Spin. Alternatively, please call us on 01306 876883 for further information or to book your place in the meantime.

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